Story
We are fundraising for Children’s Hospice South West to help make the most of short and precious lives.
Children's Hospice South West provides hospice stays, emergency care, palliative care and end of life care at 3 children's hospices; Little Bridge House in Devon, Charlton Farm in North Somerset and Little Harbour in Cornwall.
Please help us reach our fundraising target to provide care and support to babies, children, young people and their families across the South West.
John ,Dave and Jose are taking part in Ride for Precious Lives 2026 for Children's Hospice South West from the 10th - 12th of July.
We will be cycling over 200 miles across 3 counties over 3 days to raise vital funds for children and young people living with life limiting conditions and their families.
We are doing this to celebrate the lives of Johns boys, Reuben and Bryn,.
Ze has joined our team this year whose wife Louisa has dedicated many years to the hospice working at Little Harbour.
Our thanks and appreciation go out to Louisa and all her colleagues who dedicate their lives to helping and caring for others.
Johns story
Reuben and Bryn were born on the 20th January 2008 and at 27 months of age they were diagnosed with a genetic, neuro metabolic disease called Krabbes Leukodystrophy.
This was a terminal illness and shortly after their diagnosis they were put on medication and had gastrostomy’s fitted.
We were very lucky as a family that throughout the first few years the boys had many visits to Little Bridge House and then followed by visits to Little Harbour hospice which opened in December 2011. This was very beneficial as it is located in St Austell which made journeys much easier for rest-bite as well as being able to reach the hospice for emergency visits much more quickly.
Bryn passed away on the 29th of November 2012 and in a short time after Reuben passed away on the 4th of a July 2013. Both of the boys passed away at Little Harbour surrounded by family and friends.
The support from Little Bridge House and Little Harbour does not go unnoticed. They were a great help and support throughout this difficult time and we considered them as friends and family.
We would be extremely grateful if you are able to donate as little or as much as possible to help this charity carry on helping and supporting families like Johns.
