Jonathan and Charlie are running the AJ Bell Great Birmingham Run - Half Marathon to raise money for The Max Ward Foundation.

Max was diagnosed with Angelman’s syndrome on 20th May 2022.

Angelman syndrome (AS) is a rare neuro-genetic disorder that occurs in one in 15,000 live births or 500,000 people worldwide.

People with Angelman syndrome have developmental problems; walking and balance disorders, gastrointestinal issues, seizures and little to no speech. Despite these symptoms, people with Angelman syndrome have an overall happy and excitable demeanour.

An individual with AS will light up a room with their smile and laughter, they love water, sleep very little and are some of the bravest people you will ever meet.

The Max Ward Foundation has been setup not to support Max but as a way for the trustees and Max to give back to the Angelman and wider community.

Supporting those with additional needs, their families, carers and allowing access to wider support services.

To promote research into Angelman syndrome and rare genetic conditions

Thank you for your donations.