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I'm Joining Team Lily At The London Marathon 2026 To Help Them Beat Mito

Jonathan Coulson is raising money for The Lily Foundation

London Marathon 2026 · 26 April 2026 ·

Please support our amazing runners at The London Marathon 2026 and together we will find a cure for Mitochondrial Disease

Story

In memory of William, died 2025, aged 2,5 years.

This year, I’m running the London Marathon in support of The Lily Foundation, a remarkable charity dedicated to helping those affected by mitochondrial diseases and funding vital research to find a cure.

This cause is deeply personal. In August this year, our family lost a much-loved little boy — William, aged just 2½. William had Leigh’s Syndrome, a rare mitochondrial condition, and throughout his short life he showed incredible strength, courage, and spirit.

I have the privilege of running my first official marathon in William’s memory — to honour his bravery, to support other families facing the same devastating diagnosis, and to help raise awareness of mitochondrial disease.

Any donation, no matter the size, will make a difference. Your support will go towards research, support for affected families, and, we hope, one day — a cure.

In memory of William

Born January 25th, 2023 – Died 29th July 2025

Thank you for your kindness and generosity.

The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today.

Did you know every twenty minutes a child is born who will develop Mitochondrial Disease by the age of 16! There is no cure for this disease which is for many, debilitating and life limiting.

Please stand with us and fight Mitochondrial Disease and fight for hope.

Donation summary

Total
£6,444.53
+ £577.50 Gift Aid
Online
£6,444.53
Offline
£0.00

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