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Jonny's fundraiser for Motor Neurone Disease Association

Jonny Syvret is raising money for Motor Neurone Disease Association

Rob Burrow Leeds Marathon 2026 · 10 May 2026 · Start fundraising for this event

The Rob Burrow Leeds Marathon will take place on Sunday 10 May 2026 and has been inspired by the Burrow family and their extraordinary efforts to raise funds and awareness of MND. Rob Burrow CBE sadly died on 2 June 2024.

Story

Hello and thank you for visiting my page.

It's almost a year to the day that we lost my brother Andrew to MND. It is a devastating disease and one which , at the moment, has no cure.

Andrew faced this one sided battle with humour, pragmatism and a determination to care for his wife and children. The support he received from friends and family was staggering and showed just how much he was loved and respected.

The MND association and particularly, Jen, were incredibly supportive and helped Andrew, Jo and the family to navigate a very challenging time. Funds are desperately needed to try and level the playing field and find a cure for this awful disease.

All donations are greatly appreciated, hopefully I can make him proud, thank you in advance.

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Motor neurone disease (MND) is a progressive disease that attacks the motor neurones, or nerves, in the brain and spinal cord. This means messages gradually stop reaching muscles, which leads to weakness and wasting.

MND can affect how you walk, talk, eat, drink and breathe. However, not all symptoms necessarily happen to everyone, and it is unlikely they will all develop at the same time, or in any specific order.

Although there is currently no cure for MND, symptoms can be managed to help you achieve the best possible quality of life.

We need your support.

£85 could pay for an important chemical to preserve 600 tubes of cells when they are frozen

£280 could pay for a person with MND to download their banked voice

£500 could fund a tablet device, giving the ability to communicate with loved ones

£1000 could pay for detailed analysis of DNA to help us better understand the causes of the disease.

Donation summary

Total
£2,980.00
+ £696.25 Gift Aid
Online
£2,980.00
Offline
£0.00

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