Story
Thanks for taking the time to visit my JustGiving page.
So I have decided to raise some pennies for the hugely important Myhre Syndrome UK and Europe: https://www.myhresyndrome.com/stories
Two questions that you might well have what am I going to do? And what is Myhre Syndrome? Well let’s start with the what is Myhre Syndrome. Myhre Syndrome is an extremely rare genetic disorder, see link below for more information: https://rarediseases.org/rare-diseases/myhre-syndrome/
When I say rare I mean, it’s so rare that the true numbers of people whom have Myhre Syndrome worldwide, is actually unknown, but it is said that it is less than 200 confirmed cases worldwide. Myhre Syndrome UK & Europe is such an important and amazing charity and particularly for me, because my niece Rachel, who is 8 and just completely amazing, (as are all my nieces and my nephew) but Rachel is one of the people who has Myhre Syndrome. Anyone who knows Rachel will know just how amazing she is and anyone who doesn’t should meet her and find out.
So what am I going to do? Well, I Joseph Wilson, who loves a pint! Have decided that throughout October, that I’m not going to drink any alcohol! Yes that’s correct, no beer for a full 31 days! On top of this I’m going to, through the month of October, going to do a Move for Myhre! I am going to cycle at least 200 miles over the month of October and commit to run at least 20 miles over the month of October.
Thanks for reading this and thanks for sponsoring me, anything you can give is hugely and greatly appreciated. Thank you.
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