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Richmond Runfest Half Marathon 2023 · 10 September 2023 ·

Imagine being told your toddler you thought was healthy, but perhaps slow to progress, in fact had a rare and devastating disability that would leave them needing lifelong 24/7 care. Rett syndrome changes lives irrevocably. With your support Rett UK is there from the beginning. #ToKnowHerIsToLoveHer

Story

Every year, JSS Search selects a chosen charity to raise money for. We all make our own suggestions, based on causes close to our hearts, and then come together to pick one that we all believe could benefit from our help. This year we have chosen Rett UK, and here's why...

Rett syndrome is devastating for a family. Having suspected something was not quite be right, suddenly they are told their child will be profoundly disabled, with multiple health problems including epilepsy, a curved spine, breathing problems, feeding difficulties and gut/bowel issues.

Rett UK is there to pick up the pieces; emotional support, high quality, accurate advice & information, advocacy, reducing isolation, empowering families, building emotional resilience and helping the person with Rett syndrome live a life worth living.

Please donate if you can, in order to support both those suffering with Rett syndrome, and their friends and families too.

Donation summary

Total
£730.00
+ £161.25 Gift Aid
Online
£730.00
Offline
£0.00

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