Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity. I’m trying to raise awareness of this ultra rare cancer .After 6 months and numerous biopsy’s this was my diagnosis .It honestly could be worse but having been through this long process I’ve found there’s very little there for EHE sufferers .There’s a lovely supportive what’s app group who are trying to fundraise to find a cure through research or at least drugs that are geared for our condition .At the moment there are inhibitors offered if your cancer is progressing and these are not specific to our cancer just borrowed from other cancers treatment.This is such a rare cancer that relatively little is known about it and apart from regular scans to monitor its progression there is little to do since it doesn’t respond well to normal cancer therapies.As you can see from the photo quite a number are fit and able to carry on life as normal as I intend to do .What comes next who knows ,but with more funding ,more research ,hopefully drugs aimed at not just inhibiting progression but reversing the sarcomas we may be able to make this an extinct cancer rather than extremely rare .Please mention this page to anyone willing to give any amount at all ,I’m grateful for any help as I’m sure all EHE patients are .I’m just going to carry on living life to its fullest .Thank you