My beautiful 4 year old granddaughter Luna has Cystic Fibrosis.

She was diagnosed at 3 weeks old and our world fell apart at learning she had this condition, as we thought (naively) we would outlive her and never see her live as full a life as (most) children do.

However, once we had learned how to manage her daily needs, we were confident that she will continue to live life to the max! Luna has faced many challenges and does daily, but her mummy and daddy are truly amazing and are definitely her (and our) heroes. They face challenges that we do not always see, because Luna looks so well and happy.

Cystic Fibrosis does not only affect her respiratory system, but also her digestive system too. Everything she eats has to have the fat content checked and medicine administered to help her absorb it. With an active, always hungry 4 year old, this is not all that easy I can tell you! And don’t even ask about the trauma a spontaneous request for ice cream brings if you don’t have the Creon 🙈

There is Physio twice daily, CF drugs twice daily, often antibiotics due to infections, plus her Creon calculated at every meal, snack, etc does take its toll, especially on a tired little girl. There are numerous health hazards all around too, that we would not even consider harmful. To others, they aren’t. Her mummy and daddy always have to be on the ball, trying to keep her safe from germs that can impact on her health greatly. Some days area harder than others, but they all take this in their stride, for Luna.

Luna is a very happy, active little girl and this is down to her parents. They are incredible in ensuring Luna has no barriers in life. 💛

My fundraising will be helping Cystic Fibrosis Trust fund vital research as they race towards effective treatments for all. We want to ensure that Luna and others like her, continue to live a full life without limits. 💛

Together, we can make sure everyone with CF can look forward to a brighter future.

Please view the gallery on the wear yellow poster for more pictures of Luna x