Marc and I have ran two half marathons for Reverse Rett and this year we have taken on the challenge to run a Marathon for our best friend’s beautiful daughter Lily !

The UK Rett Syndrome community is at a pivotal moment at the moment with two clinical trials of gene therapies underway.

Much is required of our small, rare disease organisation at this time. At Reverse Rett, we are packing a mighty punch in accelerating disease-modifying treatments for Rett syndrome but we need your support to keep our work going.