A little background into my Mito journey.

On April 23rd 2024 after nearly 2 months of investigations & tests my then 4 month old daughter Remi finally got a diagnosis of a rare Mitochondrial disease known as RARS2. There are very minimal cases of this mutation worldwide meaning the future for Remi is unknown. I have decided to run the marathon for the Lily Foundation as they do so much to support families and individuals through their journey with Mito, trying to fund research and development for what is currently an incurable disease. Running 26.2 miles is not going to be easy but it is just a fraction of the difficulty Remi has and will go through along with many others who also have a Mitochondrial disease

The Lily Foundation was founded in Lily's memory, having lost her battle to Mitochondrial Disease at just eight months old. The charity aims to give hope, answers and support to the many other children and families that face the challenges of this disease today. Did you know every day in the UK a baby is born who will develop Mitochondrial Disease! There is no cure for this disease which is for many, debilitating and life limiting. Please stand with us and fight Mitochondrial Disease and fight for hope. I am running 26.2 miles for my beautuful daughter Remi, please donate if you can.