Thanks for taking the time to visit my JustGiving page.

On 4th October 2026 my oldest daughter Stephanie will be taking part in The Great Scottish Run half marathon.

Stephanie is dedicating this run to support Action for BPAN, a vital charity raising funds for research and support for families affected by BPAN (Beta-Propeller Protein-Associated Neurodegeneration)

BPAN is an extremely rare and devastating neurological condition that affects children and young people. It causes progressive loss of movement, seizures, cognitive decline and other serious health challenges - and at present there is no cure or effective treatment.

Families affected by BPAN face a daily struggle, filled with uncertainty and heartbreak, while advocating for better understanding, care and hope.

Action for BPAN was started by parents driven to make a difference and give a voice to this community. The charity works tirelessly to fund vital research into a promising gene therapy project at GOSH and UCL, which they hope will reach human trials in the near future. They're dedicated to raising awareness across the UK and beyond and to supporting families navigating the challenges of living with BPAN.

This charity is extremely important to us as a family. Some of you know my youngest daughter Saylor who is 5 years old has been diagnosed with BPAN. Her determination to face every day challenges reminds us that every step forward no matter how small truly matters.

That is why I am asking for your support.

Please donate what you can to this page.

💜