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Kate & Bryony's fundraiser for Alex, The Leukodystrophy Charity

Bryony Goodliffe is raising money for Alex, The Leukodystrophy Charity

Team: Team fundraising for Alex, The Leukodystrophy Charity

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Wingwalking · 25 May 2025

Alex, The Leukodystrophy Charity (Alex TLC) was founded in 2004 by a mother whose two sons had been diagnosed with leukodystrophy. She recognised the severe lack of information and support available and wanted to make sure that no one had to face leukodystrophy alone.

Story

Leukodystrophies are rare genetic disorders that mainly affect the white matter of the central nervous system (ie the brain or spinal cord). They affect people of all ages and backgrounds, most notably children.

Leukodystrophies are usually degenerative, causing symptoms such as impaired mobility, vision, speech and hearing, incontinence,and loss of cognitive skills. In many cases, this sadly means a reduced or limited lifespan.

Your donation will help Alex TLC continue to provide the best support possible to those affected.

Thank You

Donation summary

Total
£767.00
+ £184.25 Gift Aid
Online
£767.00
Offline
£0.00

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