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Great Manchester Run Half Marathon 2024 ยท 26 May 2024 ยท

The MPS Society provides specialist support to children, adults and families in the UK who are affected by MPS, Fabry and related lysosomal storage diseases and we fund research into treatment and therapies. These diseases are rare, genetic, life-limiting conditions with no cure.

Story

๐Ÿฆธโ€โ™‚๏ธ The Mission: Supporting Louis, Our Brave Fighter ๐Ÿฆธโ€โ™€๏ธ

Our Nephew Louis is battling Hunters Syndrome, a tough condition. But with our support, he's not facing it alone! Hunters Syndrome is like a sneaky villain, causing trouble by messing with the body's enzyme levels and leading to physical and developmental issues over time. But fear not! By donating, showing some ๐Ÿ’•๐Ÿ’• and increasing awareness, we can help Louis and the family face this challenge head-on!

The Team ๐Ÿƒโ€โ™€๏ธ๐Ÿƒโ€โ™‚๏ธ๐Ÿ’ซ

Uncle Andy (Shonaโ€™s brother)- The Brooklyn Bolt - is gearing up for The Brooklyn Half, NYC on Sunday, June 2nd!

Auntie Kayleigh (Shonaโ€™s sister) - The Marathon Maven - will be racing in the Great Manchester Half Marathon on Sunday, May 26th!

๐ŸŒŸ The MPS Society: Our Superhero Alliance ๐ŸŒŸ

The MPS Society are a league of champions, providing support, resources, and hope to our family. With their guidance, we're empowered to make a real impact and fight against the villains of rare diseases!

๐Ÿ” Our Goal: Providing Solutions for Louis's Challenges

On May 1st Louis will be going through chemotherapy and Bone Marrow Treatment (BMT). This will give Louis the tools he needs to fight Hunters Syndrome! These treatments offer hope for managing symptoms and improving Louis' quality of life.

๐Ÿ’ฅ Why We're Running: Funding Hope and Research ๐Ÿ’ฅ

Louis, Shona (Mum and our sister), Chris (Dad), and Olivia (sister) - have been through so much already. From hospital visits to doctor appointments, having to move house, and now about to spend 8 weeks apart for the treatment, they've shown incredible strength. Now more than ever, they need our positive vibez ๐ŸŽถ, powerful strength ๐Ÿ’ช and super resilience for the next steps in Louis's treatment journey.

๐Ÿ’ช Join Us in Making a Difference! ๐Ÿ’ช

Together, we can help Louis and our family face this challenge with courage and determination. Let's make a real impact on Louis's journey to better health.

With great power, comes great responsibility.- Stan Lee, 1962

Let us use our power for good and race, laugh, and triumph, one stride at a time. Ready, set, go - Let's hit the pavement and make a difference! ๐Ÿƒโ€โ™€๏ธ๐Ÿƒโ€โ™‚๏ธ๐Ÿ’ซ

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Donation summary

Total
ยฃ3,880.68
+ ยฃ778.10 Gift Aid
Online
ยฃ3,880.68
Offline
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