I’m running the London Marathon in 2026 for Lily and all those affected by neurofibromatosis.

I'm supporting Nerve Tumours UK because their mission means a great deal to me. They provide crucial support to people living with the Neurofibromatoses- the conditons that cause nerve tumours.

They are dominant genetic conditions, which means that they can be passed on in families from one generation to the next through genetic inheritance. Similarly, about half of nerve tumours cases recorded have no previous family history of the condition. In other words, it can occur totally “out of the blue”. Lily’s NF1 is totally out of the blue, just confirming how special she is

Lily was diagnosed in Dec 2024 at 22 months old after initial concerns about her eye when she was only 4 months old. Sadly the route to diagnosis was not straight forward and our journey was very convoluted. This is sadly the case for so many. I feel passionate about spreading awareness of the condition. Lily has multiple compilations relating to her condition including a plexiform neurofibroma (tumour) behind one eye, an optic pathway glioma (tumour) behind her other eye and congenital pseudoarthrosis of her fibula. She recently underwent surgery at Great Ormond Street to try to debulk a the tumour behind her eye and wears a splint to protect her leg. Lily will be having more surgery in 2026 to try to open her eye. She’s had more hospital appointments and procedures since her diagnosis than most adult. Despite all of this she’s a happy, confident and incredibly resilient toddler!! Nothing stops her.