Story
Zoe is the daughter of our close friends, a 20 month old girl, who was diagnosed with a rare condition (CCHS).
We are participating in Athens Marathon Event on the 9th of November to raise awareness and support research on CCHS.
CCHS, causes children to stop breathing every time they fall asleep.
There is currently no cure or therapeutic options so lifetime artificial support is required.
Keep Me Breathing, is a charity who provides hope for sufferers of CCHS with a 5 year plan to deliver the technology that will let CCHS children breathe in their sleep, without needing a nurse & mechanical support in the room.
An Introduction to keep me breathing !
Medical Endorsement Letter and Signatures
130+ inc. Great Ormond Street Director of Pediatric Bioethics and Chair of the International Advanced Paediatric Life Support Group
CCHS explained in one minute by Doctor Alexander Deng
The Times Hope at last for baby who can't breathe while asleep - featuring the charities directors amazing son Casper!
When sleeping is Deadly KMB's short film featuring the beautiful Beauden Kent
Anastasia will be participating in the 10Km race and Thanos & Yiannis at the Full Authentic Marathon race!
Any donations to our fundraiser will be greatly appreciated and we will see you at the finish line !
Thanos, Yiannis & Anastasia
