BPAN is a rare, life-limiting condition that causes progressive neurological decline, seizures, early onset Alzheimer's and movement disorders such as Parkinson's and Dystonia. BPAN is a cruel condition that takes so much away from these children and is heartbreaking for families to go through. Action for BPAN was created by families to help fund the groundbreaking research into treatments and cures, support families, and raise awareness of this devastating disorder.

Every pound raised is a step closer to life-changing treatments and a brighter future for all children living with BPAN.

Please support us on this journey and together, we can turn hope into action!

You can find out more about current research, Action for BPAN and read about some of the amazing children and families we support on our website. https://www.actionforbpan.co.uk/