We aim to end the ignorance, injustice and neglect experienced by children and adults with M.E.

We're working to ensure children, young people, adults and families living with the illness are supported during this unprecedented time and beyond. Our dedicated team is here for anyone living with, or supporting someone with, M.E. of any age, anywhere in the UK.

ABOUT ME

Diagnosed with cfsme myself in 2016 it’s a constant battle with daily sacrifices but I am one of the lucky ones.

Prior to developing this illness I was a highly active mum and wife with what was classed as an entrepreneurial mind being nominated for small business awards and even attending Downing Street as one of the businesses chosen to represent the UKs first ever small business Saturday in 2013.

Going from that to being bedridden with episodes of paralysis, unable to go to the toilet or wash yourself and with a poorly misunderstood condition where the caring professionals were far from it.

I say I’m one of the lucky ones, this is because;

1) I have had close family support

Many others are alone.

2) At the onset of my illness I had an amazing GP who advocated for me and didn’t stop until we received a diagnosis

Many others have had traumatic experiences with GPs.

3) My diagnosis was given within the year I became unwell.

Many others waited years for a diagnosis and some are still waiting.

4) I have improved going from severe/moderate to moderate/mild

Many others are trapped in a never ending hell.

So why am I raising funds now?

Well, in all honesty I have had to be selfish. The first 1-3 years were spent bed and sofa bound with the next few years the tiny spells of time I could stand noise were spent with my family and the last 2-3 years have been focused on a balancing act of pacing, returning to employment and regaining some independence.

My kids were 8 and 11 when I became unwell (now 16 & 19!), we can never recover those lost years where they missed out on so much but I want to make them proud of what we’ve achieved together as a family and I hope it makes them stronger for the craziness of this life we all live.

I now feel I have some additional head space and energy to support and raise awareness for this debilitating life altering and often soul destroying illness.

I will be donating 25% of sales of my handmade creations to this fundraiser both from my Etsy channel and any events I am well enough to attend.

You can connect with me on social media and view my Etsy shop via my Linktree profile https://linktr.ee/KerryAnnField

I hope you will join me on this journey.