Story
✨ My London Half Marathon for Tourettes Action ✨
This will be my second half marathon.
And I am running it for the person who inspires me every single day.
My son.
I am raising funds for Tourettes Action because Tourettes syndrome is still misunderstood, stigmatised and under-researched.
People often think Tourettes is only about swearing.
Only around 10 percent of people experience coprolalia.
There are many different symptoms and every person’s experience is unique.
You might not always see my sons symptoms.
But I see the strength it takes for him to move through the world with pain, noise, tics and uncertainty.
He is one of the kindest and most emotionally intelligent people I have ever known.
He teaches me more about resilience and compassion than any book ever could.
He loves football and keeping fit.
But the extra push of exercise drains his energy and can lead to burnout.
Sometimes it leaves him unable to walk.
There have been so many moments where I have cried relentlessly watching him struggle.
I still cry during his hardest days.
I would take every bit of his pain if I could.
But then I remind myself that I am lucky.
I do not have the pain he carries.
He does.
And I am certain he chose me as his mama for a reason.
To be his voice.
To walk beside him.
To fight this battle with him every day.
People often tell me they barely notice his symptoms.
And that is exactly why I am doing this.
It is the behind the scenes moments that people do not see.
It is the lack of understanding and lack of education.
And that is where we need real solutions.
I am running to show my son that I accept him exactly as he is.
I am running to raise awareness because understanding builds compassion.
I am running to push for more research because families deserve real answers, not assumptions.
And I am running because I can.
Because he shows me every day how to turn pain into purpose.
Over the years, I have redesigned my life to understand him better and support him more fully.
Yoga, breathwork and mindfulness have helped him physically and mentally.
And they keep me grounded so I can show up for him in the way he deserves.
We are navigating this together.
We are learning from each other.
We are adapting.
We are finding strength even on the hardest days.
Last year, as I reached the final stretch of the race and felt like I could not take another step, he ran beside me and cheered me on.
That moment carried me further than my legs ever could.
That is why I am running again.
He is the fuel that keeps me going.
This is not a sad story.
This is our truth.
Tourettes still carries stigma, misinformation and unkindness.
But behind the stereotypes are real people, real families and real challenges.
My son is my hero.
I do not know how he carries pain with so much courage, but he does it every single day.
And I am grateful that I get to be his mum.
If you choose to support us, whether by donating or sharing, we are truly grateful.
Together, we can raise awareness, fund research and create a kinder world for people living with Tourettes syndrome.
Thank you for reading our story.
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