I’m raising money for UP, the adult cerebral palsy charity because cerebral palsy doesn’t stop at childhood even though the support too often does.

My wife lives with cerebral palsy and it shapes our everyday life in ways that aren’t always visible to others. Like many adults with CP she has had to navigate a system that isn’t designed for people with lifelong conditions particularly once childhood services fall away.

Around 130,000 adults in the UK live with cerebral palsy making it as common as conditions like multiple sclerosis or Parkinson’s disease. Yet CP is still widely seen as a “childhood condition” and adult services are often poorly coordinated inconsistent or simply unavailable. Many people are left to manage complex health needs on their own juggling multiple appointments with no single point of oversight.

This lack of joined‑up care matters. Adults with CP are more likely to experience chronic pain fatigue mental health challenges and other long‑term conditions often earlier in life. These issues don’t exist in isolation but too often that’s how they’re treated.

UP exists to change this. It’s one of the only UK charities focused entirely on adults with cerebral palsy working to make them visible better supported and properly understood. It campaigns for improved adult services raises awareness and helps people with CP live well throughout their lives.

This cause is personal for me but it’s also about fairness. Adults with cerebral palsy deserve coordinated lifelong support not to be forgotten once they reach adulthood.

Thank you for anything you’re able to give or share.