We are a national alliance of over 220 charities and patient support groups. Together we advocate and campaign for the 3.5 million people in the UK with a rare, genetic or undiagnosed condition - improving diagnosis, care coordination and treatment options. We run Rare Disease UK and SWAN UK.
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In pursuit of greater awareness and appreciation of Rare Disease and Syndromes-Without-A-Name among the medical fraternity and public.
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