In 2021, when my son Bruce was 5, he was diagnosed with Duchenne Muscular Dystrophy - a life limiting, muscle wasting disease. To say that we were devastated is a huge understatement. It felt like our world had fallen apart. I hadn't even heard of Duchenne, and over the next few months I effectively had a crash course in genetic science to try to understand how this had happened, and what it meant for Bruce's future.

Bruce was, and still is, a happy, funny, clever (too clever for his own good sometimes!), active, stroppy, determined, caring and kind boy and it seemed for a while that Duchenne was going to take all that away from him, but over the last 2 years we have found that he can still do all the things he wants to do, and that we want him to do, but those things as he gets older and becomes less physically able might look a bit different. Duchenne UK raises money to support research into things that may help Bruce's future. That may help him to do more. Currently, the main treatments for Duchenne Muscular Dystrophy are steroids and physiotherapy. There is no cure.

Each year, Duchenne UK organises the Dash AT HOME event, which is what I am taking part in. From 31st March - 12th May I will be walking 300km (including a full marathon on the last day - Friday 12th May) and your support (by way of motivation and money!) will help me to raise lots of money in aid of Duchenne UK, which funds life-changing research, supports patients and funds programmes to advance progress to get treatments faster. Thank you so much.