May is ehlers danlos syndrome awareness month.

Most of my friends know me as the football player that was injured 90% of the time with ligaments injuries of dislocations.

In December 2021, my EDS decided to advance and I ended up losing 5 stone in 10 days, going into organ failure and intestinal failure, and given 3 months to live.

4 years on, 10 near deaths, countless feeding tube placements, central lines and midline placements, 1 emergency heart surgery and 5 other vascular surgies, I'm now thriving on TPN (IV nutrition) and IV fluids at home instead of living in the hospital like I was previously.

There is limited research and understanding into EDS and as my consultant puts it, treatment is all trial and error and when it works for a short time it's great but often doesn't last long.

I'm currently on the last treatment option we currently have and I'm lucky enough to have the people I do around me pushing me to keep fighting for new treatments.

Due to this, I will be completing 100 miles of walking in May for EDS research funding.

If anyone feels like they can donate that would be greatly appreciated.