As the devoted big brother of a brave little girl diagnosed with Wiedemann Steiner Syndrome (WSS), a rare genetic condition affecting only around 2,000 people worldwide, I am inspired to take action. This rare syndrome presents unique challenges that require greater awareness and support. To honor my sister/cousin Nellie and all the incredible warriors fighting WSS, we will be undertaking a personal trek up Pen y fan on 20 September 2026 alongside my cousins Lennon Sienna and Leo.. National Wiedemann Steiner Syndrome Warriors foundation is dedicated to supporting families affected by this condition and advancing research for better treatments. However, they need our help to continue their vital work. By raising funds and spreading knowledge about WSS, we can make a meaningful difference in the lives of those impacted. We invite you to join me in this mission by contributing to our fundraising goal of £500 Every donation brings us closer to improving awareness and resources for WSS families everywhere. Together, we can climb this mountain not just physically but also in hope and solidarity for all those living with Wiedemann Steiner Syndrome.