Story
Last summer (2023) our lovely mum was diagnosed with an incredibly rare form of sarcoma; EHE (epithelioid hemangioendothelioma), which affects less than 1 in a million people worldwide.
Because this type of blood vessel cancer is so rare, it receives very little funding and research is incredibly limited.
This makes it difficult to both diagnose and to treat EHE.
Diagnoses for EHE can be a long process - our mum was originally misdiagnosed with an aggressive form of sarcoma, (Angiosarcoma) after 2 months of tests, before then being re diagnosed with her EHE diagnosis a few weeks later.
EHE currently has no cure, with most people being diagnosed when the cancer has already metastasised.
It also affects each individual differently and can be unpredictable, making it even harder to treat.
We remain hopeful that with more funding and research we can achieve better treatments, faster diagnosis times and more awareness around EHE.
To help raise awareness and funding, myself and my brother James are organising a chain of charity events and fundraisers, starting off with a raffle.
***Please note this raffle has now closed - all winners have been notified***
If you would like to donate and receive a ticket for the raffle, please make a donation of £5(per ticket) to this page.
Once your donation has gone through, please tick the box alongside “I'm happy to be contacted". Justgiving can then share your details with me to contact you if you’re a raffle winner.
Our raffle will be drawn on Saturday 3rd August.
Please if you can’t donate, we would appreciate it so much if you could share and spread the word around EHE to help us raise awareness for those ‘One in a million’s’ like our amazing mum.
Thank you, Kirsty & James
**Raffle prizes currently include**
•Grazing board for 2
-Grazing Tables & Platters
•1h PT session (online or in person)
-Freya Active Fitness
•1.5h personal or family photo shoot
-Freya Louise Photography
•Lavender eye pillow + £20 gift voucher
- My Yogi Tribe
•20x plant protein balls
-Plant Powered Protein
•Calming aromatherapy hamper
-Take Five Aromatherapy
•T-shirt, beanie + hypnobirthing online course
-The Birth Uprising
•Baby massage (online)
-Settled Petals
•Space mask
• 30 day bootcamp pass
-Bags Bootcamp
•Aromatherapy goodies
- Amphora Aromatics
•Walkers crisps + nuts hamper
