Nimmy's cancer journey

Nimmy is bright, beautiful and very brave. I see Nimmy most weeks and her smile lights up the room, she also has the loudest laugh of all her siblings.

Just after her 9th birthday in July 2019, my granddaughter Nimmy was diagnosed with Langerhans cell histiocytosis (LCH) confirmed by a biopsy on a spinal tumour. LCH is a rare childhood cancer and is the only cancer known to resolve itself. We held our breath hoping it was so.

LCH is also a disease that reactivates. In January 2020 another lesion was found on her skull and Nimmy had chemotherapy and steroid treatment for a year. This treatment finished in March 2021. Weeks later skin lesions were treated with steroid cream. In November the same year another tumour was removed by neurosurgery.

2022 was a good year and we crossed our fingers that Nimmy had beaten LCH.

Days after her 13th birthday in June this year, Nimmy bravely went through more surgery to remove yet another tumour on her skull. Scans and tests then showed all was well. Within days LCH had crept into her pituitary gland. Chemotherapy and other treatments have started and we don’t have any idea what the future holds for Nimmy.

LCH is a rare disease and gets very little funding for research - 95% of the funds are raised by families whose lives have been touched by LCH. Our family, as well as Nimmy herself, want to help and change the future for other children with LCH.

Nimmy loves food and when she is well she helps me to cook Indian Street snacks.

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