At just 14 months old, Daisy warnes and her family rely on the support of Bluebell Wood Children’s Hospice. This support is crucial as Daisy suffers from a rare genetic epilepsy, SCN2A, enduring up to 100 seizures on a bad day and at least 30 on a good day. These episodes typically last between 45 seconds and 1 minute, leaving the child visually impaired. At times, they require rescue medication when in status epilepticus. Despite this challenging journey, Daisy remains a true fighter. The goal is not only to raise funds for this brave soul but also to raise awareness about child epilepsy SCN2A.

Bluebell Wood Children’s Hospice provides comprehensive care for babies, children, and young people with life-limiting conditions. Their wide-ranging support services are tailored to each family's needs, including overnight care, music therapy, counseling, sibling support groups, home visits, and more. It costs approximately £6.5 million to keep their doors open for families across South Yorkshire and beyond. Only 16% of this amount comes from statutory funding; the rest relies on fundraising efforts.

I am participating in the Worksop Halloween Half Marathon in 2024-10-27T00:00:00.000Z to raise funds for Bluebell Wood Children's Hospice with a target amount of £1,000 GBP. Your support will make a meaningful difference in the lives of these children and their families.