Hi guys, and thank you for returning to my JustGiving Page! I will be cycling 100km on Saturday 22nd June 2024 to raise money for Myositis UK. If you are new here, hello! My name is Lacie Gibbons and I was diagnosed back in 2020 with a life limiting muscle disease JO1+ Polymyositis, a rare muscle disease called the inflammatory myopathies that involve chronic long-standing muscle inflammation and pain. This is an uncommon disease that causes muscle weakness affecting all aspects of physical movement with ck's of 33,800. CK is a type of protein that the muscle cells need to function. The higher the CK number the more sever the inflammation. I spent nearly 6 months in hospital unable to walk or do anything independently. I was told to accept that I would have to find a slower pace of life.

I have been incredibly lucky to have the best rheumatology team who support my crazy ideas, and who have found the right treatment that works for me, knowing some people aren't as lucky! I have yearly Rituximab infusions (a type of chemotherapy) and take immunosuppressants every day to keep my immune disease at bay!

I have witnessed first hand how devastating this disease can be for so many people with minimal funding. For as long as I am able I am going to do as much as I can to raise awareness and hopefully money for Myositis UK. I am incredibly grateful that I am able to push myself and participate in these challenges, knowing others aren't as fortunate!

No matter how big or small the donation every little helps!

If you are unable to donate then please help me by sharing my page to raise as much awareness as possible.

So with all that being said I am going to cycle 100km on Saturday 22nd June starting from Newark showground cycling across Nottinghamshire and Lincolnshire all in aid to raise as much awareness and money for Myositis UK.

Thanks for taking the time to visit my JustGiving page.