In loving memory of our wonderful dad who was sadly diagnosed with CJD only 6 days before he passed. The team at the The National CJD Research & Surveillance Unit were so compassionate with our family and made sure he had the correct facilities and was comfortable in his last days. We want to help to continue their research to help families who are also suffering from this awful disease.

Creutzfeldt-Jakob Disease (CJD) is a rare illness and is one of a group of diseases called prion diseases, which affect humans and animals. Prion diseases exist in different forms, all of which are progressive, currently untreatable and ultimately fatal.

The National CJD Research & Surveillance Unit aims to monitor the characteristics of all forms of CJD, to identify trends in incidence rates, to study risk factors for the development of disease and to contribute to improving the quality of care for those with CJD. Based in the Chancellor's Building at the University of Edinburgh BioQuarter, the Unit brings together a team of clinical neurologists, neuropathologists, scientists and others.