I am taking part in a 10K walk along the Thames Path in aid of DEBRA, the UK charity for Epidermolysis bullosa (EB), commonly known as 'butterfly skin'. Epidermolysis bullosa is a debilitating genetic skin condition which leads to fragility of the skin and constant pain, due to unstoppable internal and external blistering. Caring for someone with EB can involve a lifetime of dressing wounds and managing pain. In 2024, I joined the Board of Trustees at DEBRA.

My daughter was diagnosed with EB just after birth. Like many genetic conditions it has a range of presentations from severe to mild and we are lucky that our daughter's presentation has proved to be mild so far, but the diagnosis opened my eyes to the pain and suffering that many are going through so bravely, every day. I am doing all I can to improve the care and support for people with EB in the UK. That has included becoming a Trustee for DEBRA and now, walking the Thames Path to raise awareness of the condition and to raise money.

I'll be walking with the Chair of our Board of Trustees and our CEO, as well as our lovely Director of Marketing and Communications. We will be walking the Thames Path in support of those who can't make that journey because of the pain of EB. Please give what you are able to to help us in our mission.

Together we #FightEB and together we will beat EB.

www.debra.org.uk