Story
When Florence and Ada (now 5) were 18 months old their Grandad was diagnosed with Guillain-Barre Syndrome (GBS), a rare autoimmune condition which resulted in complete paralysis, several months on a ventilator in intensive care and many many more months in hospital and rehab. Recovery is notoriously slow and painful but the progress he has made over the past 3.5 years is incredible and he continues to surprise and amaze us all!
Guillain-Barré syndrome is a rare autoimmune condition affecting the peripheral nervous system, usually leading to temporary or long-term paralysis. Around 80% of those with GBS will make a good recovery, but between 5-10% of people will not survive and the other 10-15% may be left with severe mobility or dexterity issues. GAIN helps people understand and manage both acute and chronic variants of the syndrome, raises awareness, and promotes clinical and non-clinical research into these conditions. For more info visit www.gaincharity.org.uk