My son, Aaron, was born with a rare genetic condition called KBG Syndrome.

KBG syndrome is a rare genetic disorder caused by a mutation on the ANKRD11 gene and associated with a spectrum of challenges, including developmental delays, cognitive disabilities, behavioral disorders, autism, seizures, hearing loss, skeletal anomalies, heart complications and gastrointestinal problems. Most people with KBG share at least some physical traits, including a triangular face, heavy eyebrows, curved fingers and spine, and short stature. (paragraph copied from www.kbgfoundation.org)

In the last 5 years we've had many visits to Frimley Park Hospital for consultant appointments, x-rays, MRI's, treatment on ward for cyclical vomiting and an admission by ambulance for seizures.

It has been a challenging few years and I recently found running to be a saviour for my mental health. It allows me to get out of my head and focus on something for a short burst that is not my son's health. As such, I feel this is the perfect way for me to give back to the hospital that has done so much for my family.

Please donate however much you can, it will mean the world 🌎

Your support helps us get new projects off the ground and to a greater level than would have otherwise been possible. We are able to purchase the latest cutting-edge equipment in our drive for excellence and create calm surroundings to help reduce stress felt by many vulnerable patients and our staff to aid the recovery process.

We, as an NHS charity, rely on donations to fund our work and everything we do is only possible thanks to the generosity and support of people like you. From specialist services to pioneering research, every donation helps to support our incredible NHS staff at our hospitals and enhance the level of care we provide to thousands of patients and their families every year.