Lauren and Sophie

Lauren and Sophie’s skydive for The Marfan Trust

Fundraising for The Marfan Trust
£890
raised of £800 target
by 36 supporters
Skydive, 17 March 2024
In memory of Myles Fuller
The Marfan Trust

Verified by JustGiving

RCN 328070
We fund medical research to aid diagnosis & treatment

Story

Thanks for taking the time to visit our JustGiving page.

We are doing a skydive for the Marfan Trust in memory of Myles Fuller, the bother of Sophie and Chloë, son of Kim and Clive. In 2022, Myles sadly lost his life to Marfans. Marfan syndrome is a disorder of the body's connective tissues, affecting the eyes, heart and skeleton. As the sole charity in the UK dedicated to improving and saving the lives of those with the syndrome we provide personalised support, undertake research into improved treatments, & raise awareness.

Myles was an absolute light and a joy to everyone who ever met him and his memory will live forever.

If you’d like to come and cheer us on, it will be chucking ourselves out of a plane on the17th March 2024, Myles’s birthday at East Leys Farm, Grindale Ln, Grindale, Bridlington YO16 4YB

Come cheer us on!

About the charity

The Marfan Trust

Verified by JustGiving

RCN 328070
Marfan syndrome is a disorder of the body's connective tissues, affecting the eyes, heart and skeleton.As the sole charity in the UK dedicated to improving and saving the lives of those with the syndrome we provide personalised support, undertake research into improved treatments, & raise awareness.

Donation summary

Total raised
£889.48
+ £163.25 Gift Aid
Online donations
£889.48
Offline donations
£0.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.