Tiny Tickers is a charity that hits close to home for me.1 in every 100 babies in the uk are born with a serious heart condition and my son was part of that 1 in every 100. My 20 week anomaly scan led to Rory's diagnosis of Transposition of the Greater Arteries(TGA). At one week old he endured an 8 hour open heart surgery to repair his heart which was very successful. Post surgery he was then diagnosed with a heart arrhythmia condition called Supraventricular Tachycardia (SVT). He spent over a week in the PICU where he was on life support and when he got stronger he moved to a less intensive unit to continue his recovery. After 33 days he was sent home on multiple medications to help support his hearts function. He is now 3 months old and is gaining his own cheeky personality with lots of smiles and giggles. He also has regular checkups with a cardiologist and will continue for the rest of his life.

Words cannot describe how proud I am of Rory, he truly is a little warrior who i cannot imagine my life without!

I am raising money to help support other babies that are affected by a heart defect. Not only that, but to also support families and mothers in the UK that are in the same position as me.

All money raised helps

1) Give babies the best possible chance for their future

2) Improve survival rates and give the best quality of life to CHD babies

3) Increase early detection rates of cardiac defects

4) Helps infants receive the best medical treatment for their specific condition.

And lots more.

UPDATE - Rory is now 8 month old and is still thriving! He is still attending his regular cardiology appointments to make sure his heart is still functioning correctly. He has had to wear a 24 hour electrocardiogram (ECG) device to monitor and manage his supraventriclar tachycardia (SVT). Rory continues to show strength and determination in everything he does. He makes me extremely proud every day.

Thank you for reading Rory's story ❤️