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Huntington's Disease Association Fundraiser

Lee Woods is raising money for Huntington's Disease Association
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Charity Football Match & Prize Raffle · 17 June 2023

Huntington's Disease Association England and Wales exists to support anyone who is affected by Huntington's disease. It pursues the best possible care; provides training and advice to families and professionals; raises awareness, and promotes research towards better treatment and care.

Story

In 2022 we were made aware of our Colleague Dan's Diagnosis, which was heartbreaking for him and his family to hear especially at such a young age.

I was unaware of the impact of the disease and after some research felt it was right to raise some awareness, so we have arranged a Charity Football Match not only for Dan but to raise some money for this amazing cause.

UK Power Networks Apprentices vs UK Power Networks Canterbury and Maidstone Network Operations

17th June - Prize raffle on the day

We are hoping to raise £500 and any donations would be gratefully received

-Huntington's disease is caused by a faulty gene that results in parts of the brain becoming gradually damaged over time.

-You're usually only at risk of developing it if one of your parents has or had it. Both men and women can get it.

-If a parent has the Huntington's disease gene, there's a:

-1 in 2 (50%) chance of each of their children developing the condition – affected children are also able to pass the gene to any children they have

-1 in 2 (50%) chance of each of their children never developing the condition – unaffected children can't pass the condition on to any children they have

Are YOU at Risk? Not at all, this isn’t contagious. Very occasionally, it's possible to develop Huntington's disease without having a history of it in your family. But this is usually just because one of your parents was never diagnosed with it.

Huntington's disease is a condition that stops parts of the brain working properly over time. It's passed on (inherited) from a person's parents.

It gets gradually worse over time and is usually fatal after a period of up to 20 years.

The symptoms usually start at 30 to 50 years of age but can begin much earlier or later.

Symptoms of Huntington's disease can include:

-Difficulty concentrating and memory lapses

-Depression

-Stumbling and clumsiness

-Involuntary jerking or fidgety movements of the limbs and body

-Mood swings and personality changes

-Problems swallowing, speaking and breathing

-Difficulty moving

-Full-time nursing care is needed in the later stages of the condition.

Thank You

Donation summary

Total
£2,677.00
+ £26.25 Gift Aid
Online
£2,677.00
Offline
£0.00

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