Action for BPAN is the first UK charity focused on funding research for a cure or treatment for Beta-propeller Protein-associated Neurodegeneration (BPAN).

We are dedicated to making a lasting impact in the lives of families affected by this devastating condition by providing support based on our own lived experience.​ Join us in our mission to fund vital research and raise awareness about BPAN.

I am deeply dedicated to raising funds for BPAN, a rare and challenging condition that my niece Isabella lives with. My goal is to support research and awareness efforts, contributing to the development of better treatments and, ultimately, a cure for BPAN. This work is crucial to ensuring a brighter future for Isabella and others affected by this condition.

#StepUpForBPAN #ActionForBPAN #ForeverGreatful