On February, our baby Leo was born with an ultra rare genetic condition that affects how the body processes copper. Copper is essential for brain development, growth and the nervous system. Children with Menkes often have a very short life expectancy and there is currently no treatment or cure. This is the hardest time we have ever faced, and no parent could ever be prepared for, this journey has changed us and shown us how precious each day can be. Whilst it's not easy we are determined to make the most of every moment together, surrounded by love and support.

From Day 1 of the diagnosis, EACH have been a lifeline for families like ours. They provide incredible support, not just for children with life-limiting conditions but also for their whole family, Their care goes beyond medical support, it's about creating comfort, moments of joy and precious memories.

At the Hospice families can access;

Specialist Palliative Care

Counselling and Emotional Support

Hydrotherapy Sessions

Sensory Rooms

Respite Days - as nursery often isn't an option

The hospice relies on charitable donations to keep going, we want to fundraise to ensure the hospice can continue and be there for families like ours, today and in the future.