For Elijah our infantile spasms warrior and stroke survivor!

In January 2023 Elijah was admitted in to hospital where he was diagnosed with infantile spasms and right side hemiplegia palsy. A CT scan revealed Elijah had a stroke which resulted in a large brain injury on the left side of his brain affecting the limbs on the right side of his body.

UKIST have been a lifeline to us, we will forever be grateful for the support we have received during the most terrifying time.

Myself and work colleagues will be running the Brighton half marathon to raise some vital funds that will continue to support UKIST in being able to support families and children. To raise as much awareness as possible so that one day Infantile Spasms will be known worldwide and become less of a battle during diagnosis stage.

The UK Infantile Spasms Trust (UKIST) provides a vital network of support to families with children affected by the rare seizure disorder Infantile Spasms, also known as West syndrome. This is a serious seizure disorder, and unless it’s recognised and treated early, the prognosis for affected children can be very poor. The charity offers a lifeline to anxious parents via its online community, and works alongside medical professionals to raise awareness of this little-known condition. By supporting UKIST, you will make a real difference.