I was taken to Hospital aged 11 months on October 1999 after my parents suspected Meningitis symptoms. I was pale, clammy, flu like symptoms and letting out a strange cry. My Auntie and Uncle not long before had just lost their son Nicholas to Meningococcal Septicaemia. I spent several weeks in intensive care and on hospital wards, where it was discovered I had Pneumococcal Meningitis. Paramedics did not suspect meningitis and my parents needed to challenge medical professional opinions. They knew how time is critical.

Before I was admitted I was learning to walk and talking, in hospital I couldn’t lift my head or speak.

When I was discharged, I was diagnosed profoundly Deaf and given a cochlear implant a year later. Aged 13 I was diagnosed with epilepsy. When I started University, aged 18 I got in touch with Meningitis Now for support. I was able to meet others affected by the disease and realised I wasn’t alone with the hidden after effects. Not long after I contacted the nurse helpline, I was advised I could ask my GP for a referral for tests. I was diagnosed with brain injury. I have also been fortunate to receive a grant from the rebuilding futures fund for support as well as attending many day and weekend events meeting other young people.

This year I made an unwise decision to sign up to the London Marathon thinking I may not get a place. I am running to support those who have lost their lives to this cruel disease like my cousin but everyone who lives with after effects can continue to get support.