On the 8th of July, a lot of Nellies family and friends will be joining other Prader willi children and their families taking part in a 10 Mile walk to raise vital funds for 'Foundation For Prader-Willi Research'. This is a charity close to our hearts and we would massively appreciate any donations. Prader-Willi Syndrome (PWS) is a rare complex, genetic disorder that occurs in approximately one out of every 15,000 births. PWS is a ‘spectrum’ disorder meaning symptoms vary in occurrence and severity between individuals. However the common characteristics are weak muscle tone, an overwhelming feeling of constant hunger known as ‘hyperphagia’, learning disabilities and/or learning difficulties and behavioural challenges. Many of the symptoms develop and change with age.PWS affects males and females with equal frequency and affects all races and ethnicities. It is recognised as the most common genetic cause of life-threatening childhood obesity.PWS results from an abnormality of chromosome 15, and definitive diagnosis is now based on genetic testing.