On September 18th 2020, our dear Izzy unexpectedly lost her life to SUDEP (Sudden Unexpected Death in Epilepsy) at 23 years old.

Izzy was truly such a special and one of a kind girl with so much life and many dreams ahead of her. I was beyond fortunate enough to call Izzy my best friend for 12 years earth side and this past 5 years without her by my side have not been easy but Izzy lived every day to the fullest, so in her honour and to commemorate the 5 year anniversary of her passing, I will be climbing Mount Snowdon on Saturday 20th of September 2025 to raise money for SUDEP Action.

SUDEP is very rare, affecting around 1 in every 1,000 adults with epilepsy each year. No one knows the exact cause and there may be no single explanation. Although most people with epilepsy live long and healthy lives, epilepsy is one of the top-ten causes of early death. At SUDEP Action, they focus their efforts on providing tools to help keep people safe and on the priorities that bereaved families tell are important: To prevent deaths; To be supported; To be involved.