This fundraiser has a place in my heart as my fiancee underwent a double lung transplant at the age of 19 as a result of the disease and still has good and bad days.

Cystic Fibrosis is a genetic terminal disease that effects many different organs at the same time such as the lungs (mostly) the salt we need to help get rid of the phlegm by irritating the lungs to cough it up doesn’t go to the lungs we sweat it out in our skin ,CF effects  the movement of salt and water in and out of cells, which can lead to salty sweat in the skin for people with the condition.Other organs that are effected are the pancreas ,the digestive system ,the Liver - CF can cause the blockage of small ducts in the liver, leading to liver disease. Also the bones-In people with cystic fibrosis, bones may become thinner and weaker at a younger age than in people who do not have the condition .CF works By producing more phlegm that’s sticky and thick which is harder to get rid of which means it’s a perfect environment for infections especially in the Lungs the phlegm also goes in the other organs which is why people with cystic fibrosis or CF for short can’t gain weight easily so we are on a full fat/calorie diet ,which with this can cause Cystic fibrosis diabetes which is Inflammation and scarring of the pancreas can prevent the effective production of insulin. Even your reproductive system (in men) can cause infertility can be effected.But it’s a disease that can effect your daily life ,it’s harder to breathe so a lot of day to day jobs or activities can be a lot harder to do as it takes a lot more energy to do.Theres a lot of energy used just by breathing so it makes the patient tired a lot of the time and will need sleep a lot more than a normal person.This doesn’t mean they are Lazy or anything like that it just means they need more time to recover from something something so small that a normal person would be okay to do without a break or nap.

Some Cystic Fibrosis patients become so unwell they will end up on the Lung/Liver/Kidney Transplant list which sometimes can save their lives,but comes with their own complications with that surgery such as being on steroids for the rest of your life to help with you not getting infections as much ,and with this you will become on anti-immune medicine to stop your immune system rejecting the organs you was given but sometimes you can go into acute rejection so it’s not always a happy ending ,but it isn’t a cure for the disease, there are medications to help slow the progression down but doesn’t stop the disease.

About the additional symptoms of cystic fibrosis kidneys can be also effected and hearing complications, sinusitis, nasal polyps, nail clubbing and sweat, and the symptoms in babies and young children – and whether carriers get symptoms or not.

There are more than 1,400 possible mutations of the faulty gene that causes cystic fibrosis. Everyone living with the condition carries two of these mutated genes, meaning that the way it affects the body can vary wildly from person to person. When you add to this the huge range of other influencing factors, the one thing we can say for sure is that CF is as individual as you are.

There are over 10,800 people living with CF in the UK alone.