Charlotte's fundraiser for Alex, The Leukodystrophy Charity

Lorna Dale is raising money for Alex, The Leukodystrophy Charity

Highland Swing · 31 August 2025

Alex, The Leukodystrophy Charity (Alex TLC) was founded in 2004 by a mother whose two sons had been diagnosed with leukodystrophy. She recognised the severe lack of information and support available and wanted to make sure that no one had to face leukodystrophy alone.

Story

Charlotte has decided for her 11th birthday she would like to do the Highland Swing and has chosen this as the perfect opportunity to raise money for Alex TLC.

Alex TLC are a charity very close to our hearts within the Dale family. In 2022 my brother Will (Charlotte’s uncle), was diagnosed with an extremely rare form of leukodystrophy called Adrenolmyeloneuropathy.

Leukodystrophies are rare genetic disorders that mainly affect the white matter of the central nervous system (ie the brain or spinal cord). They affect people of all ages and backgrounds, most notably children.

Leukodystrophies are usually degenerative, causing symptoms such as impaired mobility, vision, speech and hearing, incontinence,and loss of cognitive skills. In many cases, this sadly means a reduced or limited lifespan.

Your donation will help Alex TLC continue to provide the best support possible to those affected.

I will post the links to both Alex TLC and The highland fling website for further information.

Thank You

https://alextlc.org

https://www.bungeejumpscotland.co.uk

Donation summary

Total
£1,120.00
+ £226.50 Gift Aid
Online
£1,120.00
Offline
£0.00

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