Story
Neive, aged 5, was diagnosed with embryonal/fusion negative parameningeal rhabdomyosarcoma, in September 2022. Her care was led from Birmingham Children’s Hospital and she endured nine rounds of intensive chemotherapy & proton beam therapy. Neive commenced maintenance chemotherapy in April 2023 but sadly her end of treatment scans in September 2023 showed disease progression in the brain and spinal fluid. Neive went home on palliative care to be with her family. She passed away peacefully and gracefully in her own bed on 24th October 2023 at aged 6 years old with her Mum holding hands and surrounded by unconditional love.