Story
Thanks for taking the time to visit my JustGiving page.
I’m raising money for the LHON Society, a charity supporting people and families affected by LHON (Leber’s Hereditary Optic Neuropathy) — a rare genetic condition that affects families in many different ways.
For my family, LHON has had a devastating impact. My son lost his sight and is now registered blind because of this condition, and my daughter has developed MS linked to the same genetic mutation. LHON doesn’t just affect vision — it can affect lives, independence, health, and entire families emotionally and physically.
The LHON Society provides support, understanding, awareness, and hope to families facing challenges that many people have never even heard of. They help people feel less isolated while continuing to raise awareness and support research into this rare condition.
I’m fundraising to help them continue their incredible work and to support other families going through similar experiences.
Any donation, no matter how small, would mean so much. If you can’t donate, sharing this page would also be hugely appreciated.
Thank you for your kindness, support, and for helping raise awareness of LHON.
