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Louise's fundraiser for The Sickle Cell Society

louise hayden is raising money for The Sickle Cell Society
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Robin Hood Half Marathon · 24 September 2023 ·

The Sickle Cell Society is the only national charity in the UK that supports and represents people affected by sickle cell disease to improve their overall quality of life. We provide information, advice, advocacy, respite, support services, hold talks, patient education seminars and training.

Story

Thanks for taking the time to visit my JustGiving page.

The reason I decided to run this half marathon for Sickle Cell Society is I recently became the Haemoglobinopathy Clinical Nurse Specialist, Lead for Transition services at the University Hospital of Leicester! Of which I am very proud of! 🥳.

This group of patients are very close to my heart 💜 and I wanted to show them and everyone how far I would go to support them and give them my everything! I am not runner, the furthest I have ever ran is a 10km (I did walk a lot!) a couple of years ago. Sickle Cell Anaemia is a genetic blood condition that affects over 15,000 people in the UK alone & 1 in 76 babies born in the UK carry the Sickle Cell trait, and yet many people aren't aware of the condition or how those with Sickle Cell are impacted by it.Sickle cell is a disorder of the haemoglobin in the red blood cells, the substance that is responsible for carrying oxygen around the body. People with sickle cell have sickle-shaped red blood cells which can cause blockages and cause episodes of severe pain (Crisis). People suffering with sickle cell disorder, often need regular blood transfusions and require regular pain management. This can help prevent crisis, treat anaemia and other severe symptoms such as strokes and early mortality. Sickle cell is an invisible condition that often goes overlooked."The Sickle Cell Society believes that individuals with sickle cell have the right to quality care. This can only be achieved if funding is made available to educate health carers and other professionals about the condition. 

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Donation summary

Total
£314.50
+ £68.63 Gift Aid
Online
£314.50
Offline
£0.00

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