On April 26th I will be running the London Marathon 2026 with my younger sister Lucia, to raise money for the Cure and Action for Tay-Sachs (CATS) Foundation. Lucia is diagnosed with juvenile Tay-Sachs which is a rare and devastating genetic condition that affects the nervous system and causes progressive neurological decline which typically reduces life expectancy to teenage years. The disease has had a profound impact on Lucia since being diagnosed in 2013 when she was 14 years old, where she has lost her ability to communicate, eat, and walk unassisted, among many other things, requiring constant care.

Unfortunately, we had to pull out of the 2025 marathon two days before the event, as Lucia, after being in and out of hospital, took a turn for the worse, and was in hosiptal recovering from a couple of infections, in addition to pneomonia, which are all secondary complications related to her diagnoses. We started this marathon journey together back in October when our palces got confirmed, and we'll finish it together, running our first marathons side by side in London next year. So on 27th April 2025 (London Marathon day), I decided to run only 26 miles, finishing at the hospital, to reflect on what we've achieved so far on this journey together.

Despite her decline in ability, Lucia continues to take each day in her stride, becoming an inspiration to many, who never fails to put a smile on the faces of others around her.

Tay-Sachs is a heartbreaking condition with no cure, and for Lucia, and many others with the disease, it provides an uncertain future, but with your support, we can help change that. Every penny we raise will go directly to funding vital research to develop treatments and, hopefully, a cure. Your donation, no matter the amount, will bring us one step closer to making a real difference for people like Lucia and others living with Tay-Sachs.

With your generosity, we can help create a future where no family has to face the devastating impact of this disease. By supporting this marathon challenge, you’re not just helping us run 26 miles — you’re helping us take steps toward a cure.

Please donate to our campaign and help us reach our fundraising goal. Your support means the world to us and to many others who are affected by Tay-Sachs.

Thank you so much for your generosity!