Hey everyone,

On September 10th Marco and Luca will be competing in the Brighton Sprint Triathlon to raise funds and awareness for the CLCN4 research. Luca's sister, Daphne, was born with CLCN4, a rare genetic condition which causes epilepsy, intellectual disability, movement disorders, and developmental issues. Fortunately, Cure CLCN4 was set up to support children like Daphne to get the treatment they need to move forward. Any contribution will help fund scientific and medical research to discover more effective treatments to help those with CLCN4.

Please join Luca and Marco and be a part of this incredible journey. Your contribution has the power to provide hope, support, and the promise of a brighter tomorrow to those living with CLCN4-related conditions :)