About me

My name is Lucas Reid and I live in the United States of America. I am 23 years old and I live with Alport syndrome, a rare genetic condition that affects the kidneys, hearing and eyesight.

I was diagnosed with Alport syndrome when I was 15 years old, together with my mother, my twin brother and my other two siblings.

For years, I thought serious kidney problems were something I would face much later in life – maybe when I was 50.

Then, at just 20 years old, I learned that my kidney disease had progressed to Stage 3b. That moment changed everything.

Rather than letting Alport syndrome define me, I decided to focus on what I could control. I discovered weightlifting and quickly fell in love with the process of becoming stronger, healthier and more confident. That passion eventually led me into bodybuilding. Today, I focus on the things that help me live well with Alport syndrome: nutrition, training, recovery and a positive mindset.

The bodybuilding challenge

On 22 August, I will try my first attempt to become a professional bodybuilder.

I will step on stage for a competition that could earn me professional status in Men's Physique bodybuilding. If successful, I could become the first person living with Alport syndrome to achieve this milestone.

Living with Alport means doing things differently. While many bodybuilders follow high-protein diets, I carefully manage my nutrition, recovery and training to protect my kidneys while pursuing my goals.

My motivation

I am fundraising for the Alport Syndrome Alliance because I want to help create a better future for people living with Alport syndrome all around the world. Research into new treatments and genetic therapies is moving forward, and I want to do my part to support that progress.

I don't want sympathy. I want to show what is possible.

Every donation, no matter the size, will help the Alport Syndrome Alliance drive vital research, support families and raise awareness of this rare condition.

Thank you for supporting my challenge and helping us move closer to a world where no one has to face Alport syndrome alone.