My little boy Finley was diagnosed with Williams Syndrome when he was 10 weeks old after being born 4 weeks early via an emergency c section due to him stopping growing and having problems with his heart. When he was born he spent 15 days in PICU where how complexed his heart condition was discovered. From there he was referred to Royal Brompton in London to be with one of the top pediatric cardiac consultants in the UK.

Unfortunately Finley will need to have open heart surgery when he approximately 2 years old to try and give him a longer stretch at life. The chances are this won't be the only heart surgery he will need and they aren't even sure if they can resolve the complexity of his heart at this stage.

Finley is nearly 11 months and the journey has not been easy!

Williams Syndrome affects 1 in every 18,000 babies born in the UK. It is a deletion of chromosome 7, it is non-hereditary and causes distinctive facial characteristics and a wide range of learning difficulties. Infants often have delayed development and can develop physical and mental health problems.

Please help me spread the word of Williams Syndrome and make it known! If you could donate anything to my fundraiser that would much appreciated.

Thank you!! 🧡🧡

The Williams Syndrome Foundation is a small charity serving a unique and very special population. We rely entirely on fundraising and donations to provide support, information and practical resources for people with Williams Syndrome and for those who love, care for and educate them.