3 years ago my youngest son was diagnosed with a variation of PCD.

From 4 months he was in and out of hospital with severe chest infections and needing to go on oxygen and lots of antibiotics. A wonderful consultant at Great Ormond Street hospital referred max for testing at the Royal Brompton hospital, which confirmed his diagnosis.

Max is fortunate it was found so early as it means treatment could start for him so early.

He has antibiotics 3 times a week, a nebuliser everyday and physio and regular hospital appointments and lung function tests.

Primary Ciliary Dyskinesia (PCD) is a rare, genetic disease affecting around 1 in 15,000 people in the UK. It's caused by abnormal motile cilia (motile cilia are the microscopic hairs that beat in the airways, sweeping secretions out of the respiratory tract). PCD can affect the lungs, nose, sinuses, ears and fertility and causes recurrent respiratory infections.

The money raised for this charity will hopefully provide small grants for things like specialist equipment, supporting research and run events to bring those with PCD together.

The last few years have been a difficult time for us and if through fundraising it means we can give other families support then it would mean so much.Thank you for any donations I appreciate it so much.